If a storm comes out we help and listen

                                    

Today went to my seizure doctor and went well but all this issues with right eye I have loss vision really fast within 4 months it’s gotten really bad to wear I can’t see the BIG E on the eye chart I also have a stage 3 cataract in back of my eye glaucoma and the possibility of eye surgery (first we got to see an eye doctor) is all to scary but I’m just calling on him to wrap his loving comforting arms around me as I fear this storm today after my seizure doctor I got hit with the reality of how bad my eye is and I just wanna to cry but I told him to comfort and help and he did so if u are afraid just trust in him his way is best he will help u just call on him 

Ephesians 4:1 I therefore the prisoner of the Lord beseech you that ye walk worthy of the vocation wherewith ye are called

CP day 3-25-19

💚💚 HAPPY CP DAY 💚💚

Mine and my sister Brittany journey with all begun on November 2 1998 our biological mom Melanie wanted us but she didn't know how to take care of us her husband Ryan had died in a shooting over drugs had just gotten remarried to now husband Matthew and mom and dad wanted to adopt they looking into it then they heard about us from are really close friends Betty and Ron (Betty pass due to cancer a few years ago) and then mom brother Arthur had cerebral palsy as well and she seen just bad nursing homes were with him she saved him from so many bad nursing homes (he’s in a good group home now) and she didn’t want us to die or end up in a nursing home he inspired her to go ahead and adopt us) so my mom and her really good friend (practically our anut Diane heard about so from mom and dad (john) (Sheri) being good friends and "they our really good friends" we got adopted at 3 weeks old I was 2lbs 2.5oz 

And britt was 1lb 13oz we got CP from lack

Of oxygen during the c-section if we were

born one-too years earlier they would have let us die they didn’t save many babies that were born in 1997-1996 that were 24-25 weeks so

Thankfully we made it though we had a less than 10 percent chance of making it they 

said we would be vegetables if we made it during our time in the nicu in hot many 

bumps we had so many brain bleeds 

We had broaderline hydrocephalus an 

They couldn’t even place a shunt in us because we were so sick an weak an 

could afford to get an infection because 

We are allergic to:

Penicillins 

Macrolides 

Cephalosporins 

Sulfonamides 

Barbiturates 

Benzodiazepines and we also had PBD & retinopathy and britt had MARSA in her right eye thankfully that got healed we had many 

Bumps out of nicu as well we were 7 years old and been a little over borderline and they put us in MRI the doctors and nurses and everyone was amazed by it hydrocephalus were completely GONE we have had a lot of bumps in our life’s with our CP with braces casting my sister had a small surgery we have a hard time with things like going places and walking/standing along time doing things like getting dress is getting harder for me getting up the stairs carrying things getting in the car seizures walking pain that is all things that are getting harder but that’s life with CP we both have one leg shorter then the other mine is my right and britt’s is her left that’s another odd thing about being a twin and having CP

Everything is my right and britt’s is her left 

have HEMIPLEGIA/UNLIATERAL CP (right side but kinda affects my left to) and britt has 

QUADRIPLEGIA/BILATERAL we both have 

Out of stocket elbows mine are both out the 

left is just a wee bit out the right one is really bad and britt olny has her left elbow out we both have hip arthritis my ankles are so 

their made of sticks an one knee is higher than 

Other again mine is my right an britt’s is her left I struggle in actually treating my CP than britt because We got 6-8 weeks of casting in 2014 and I was taking 3 types of muscle relaxers like candy because it hurt so I was taking flexeril,baclofen,klonopin I had go off all 3 of them clod turkey because I started breaking out in hives because of my hashmotos an that left me with a hard diagnose of Non epileptic seizures so their fore I cannot do Botox and muscle relaxers anymore can’t wear my braces because how out rage I am an how tight I am an I also have really bad hyperhidrosis so that sucks but hopefully some will happen really soon an I’ll get to wear braces but we still very good friends with our biological family (we have biological brother named chirs) today here's what I and britt have wrong 

I'm hypersensitive to pain an I have hypersensitive nerves as well l due to my celebral palsy and hashimoto's

30% daef (only me) 

Hypothyroidism 

   Asthma 

sensory neuropathy (I olny have)

Raynaud's syndrome

Celebral palsy 

  Palmoplantar hyperhidrosis (I olny have)

Sensory processing disorder 

Epileptic/non Epileptic seizures (simple partial an generalized tonic conic seizures ( I olny have)

Ulcerative colitis 

Irritable bowel syndrome 

Gastritis 

asthma

moderate hearing loss (I olny have)

Hip inpevment

Hyperglycemia (I olny have)

Panic attacks 

(Seizures I can hear and feel pain during them) so I listen to my music southern gospel/bluegrass  I love my band buddys They help me by giving me Jesus comfort an calming and comforting me in pain or during seizure etc now out all these medical problems I’m blessed to have them because when I’m having a problem I’m like God put this storm in my life for a reason so I get stronger in him and to be thankful that I’m alive or not worse off so this how God makes something good into something that could have been way worse I’m so thankful for all amazing blessings good or bad because he will use my bad storms for another blessing in life my life is awesome ... But Jesus beheld them and said unto them With men this is impossible but with God all things are possible—Matthew 29:11 #PAINTTHEWORLDGREEN #CPWARROIR #GODSBIGGERTHANMYCELEBRALPALSY #LIFEWITHCP #CELEBRALPASLYAWARENESS

#CELEBRALPASLYDAY  #2in500 #TOGETERWESTAND💚💚

Fuel 3-14-19

Wow I can’t believe it’s been SIX. years since we were in circles aka small groups and we frist started in our group named fuel with Dave and Kara muxlow we had written out these letters at their house and would have them to open when we were about to get out of high school I was worried about not getting them so long I’m so glad I got mine back after six years let’s just say I was really really crazy over the Duggar’s and that when first discovered the music I listen to now and I really was Not at all in my faith like I am now in fact I realize just how small my faith was when I look back from than to now I was just a really small very foolish faith back than and now I’m changed in so many ways so many amazing blessings have happened now that I actually have very big strong faith that is so amazing I’m glad I’m saved I’m glad I’m clean I’m glad that Jesus wash my sins away by the blood of Calvary and made me free

God always good

God is a Good Good Father even in the hard times when we’re weary and broken he will work the bad for his good u gotta trust him and have faith to see those awesome ome things happen in hard times it may seem really small but trust me these small things will work for a awesome prize little by little he’s always a Good Good Father and all things work for his good and all things good or bad he sees in our life’s before it actually even happens and he will never give us more than we can handle sometimes he actually gives us a bit more than WE think we can handle but God knows we can handle it if we know he will help us through an acknowledgment of he’s a Good Good Father and all things have reason really help me so when feeling weary in valleys just remember trust him and know all things have reason to happen and he’s a good good father and be thankful for all he did for u and he knows everything about u and just trust him and he will help u through

I’m back after 4yrs !!!???!!!

 Hi i know it’s been a very long time since I’ve i last posted on here AlOT of exciting things and  ALOT of bad things have happened since I posted here it’s been so crazy some of the Exciting things that have happened Got to know a lot more awesome band buddys 

get more into God than ever before 

had casting for my cerebral palsy in 2016 and had off the 3 types of muscle relaxers I was taking because I started getting hives because of my thyroid and because of that I have non epileptic seizures from going off them clod turkey BTW NEVER GO OFF ANY MEDICINE COLD TURKEY BEFORE TALKING WITH UR DOCTOR and some the BAD things that have happened 4 awesome people have gotten cancer and got lots of hospital trips and surgeries new health issues and died my dog Izzy died of cancer within less than 24hrs of her being told she’s got cancer got a new horse named bella made new friends and some awesome friends left my life Ik this post is crazy hopefully I’ll get more on track with posting thou things will be awesome